Hi!
I’m Sophie, 28 years old and from the North of the Netherlands. I live here with my dog Casper at edge of a small town. Maybe it is a quiet life, but definitely not normal…
I had great plans, hopes and ideas for the future a couple of years ago. But it all went the other way when I got sick at the end of 2005. In a half-year I developed all kinds of neurological problems. My body didn’t do what I wanted any more.
Now 5,5 year later it still doesn’t do what I want and it’s getting worse.
I have problems with controlling my muscles, I have spasms, tremors and cramps. This leads to pain, being very tired and thing like having troubles reading. It’s like having a short-circuit problem in your brain. I’m super sensitive of sounds, light, movement and touch. The doctors can’t find a real answer for my problems. Diagnoses; Conversion Disorder, Functional Neurological Movement Disorder or just We-Don’t-Know.
But in the meanwhile I’m just the same as any other person, with the same kind of feelings, dreams and faults. Something is wrong in my brain but I’m not crazy.
(Sometimes a bit weird and philosophical, but that’s just me!)
So why not share the things I do, think about and feel. Maybe I can meet other people this way with the same kind of problems or other interesting life stories. I hope to hear from you soon!
I will try to write in English, but it is my second language. That is why I hope you will excuse me for my spelling and grammatical errors.
Bye for now, Sophie
By the way; Sophie is not my real name, just as some other names in my blogs. This is because of privacy reasons. But my life and stories are real.
Comments on: "About Me" (9)
Hi Sophie, I have MS (multiple sclerosis) which is also a neurological disorder, but the symptoms I have are very similar to yours. You might want to ask your doctors about the possibility of having MS. I hope that everything goes well for you and I think your English is pretty good.
Hi Rebekah! Thank you for your reaction. No, I don’t have MS. It took the doctors a lot of talking, but they convinced me. My MRI’s are clean, and my spinal taps too. But you’re right; it look a lot like MS. And in that way I’m really glad to meet you. Maybe I can learn things from you. Now the doctors are more thinking in the region of Parkinson, because I react really good on medication with dopamine.
My English needs to get better. I have to reread my other post, so I can find my faults. Long Live Spellingcontrol!!!
Bye Sophie
Spell check is good for us whose native language in English too. I am glad to meet you too, and I hope everything works out.
In understand the frustration! You are not alone.
If would not have guessed that English is your second language if you had not said so. You have nothing to worry about!
Hi Sophie, thanks for checking out my blog! I’m so happy you left a message – we do have SO MUCH in common! I’m trying my hardest to spread awareness about our condition around the world and I’m glad you found me
You’re blog is so incredibly informative that I will definitely be linking it to my ‘relatable reading’ section and sharing it with my group on FB (Just Me – Conversion Disorder). All the information you’ve researched and ‘lived through’ and been able to put into words is very brave and I commend you for sharing your life through your words. Let’s please keep in touch!
Cheers, Lea ( http://justmekielinen.blogspot.com/ )
Hi Lea,
I reading your blog on the mail too! Yes we have much in common. I found some people in forums and in facebook, but to find the same kind of symtoms is rare. Maybe, we can chat someday on facebook. (if we can figure out the time difference
Bye Sophie
That sounds fun. I don’t know anything about the time difference though. Here is is about 1:45 or military time, 13:45.
Chatten can we do on facebook. You can find me as Sophie Brain. It’s a 6 hour time difference, so we can work that out.
I think one of the worst things is not being able to put a name to it or putting a name to it that doesn’t seem to fit. Your blog is a brave effort, Sophie, and gift to us and – I hope – something that generates real support for you.
Many blessings …