September 2010 After the first attack I was hoping it all would be over soon. But after a week I was getting really nervous. I couldn’t sleep because of the spasms and the pain. Doctor R reassured me that it would probably be over soon. I just had to take sleeping pills for 2 weeks. But it didn’t [...]
Summer 2009. Well, if the doctors can’t help me, I have to get my act together and try to get myself better, bit by bit. So I had a plan. First I took a break from my therapists for a while. When you’re sick and nobody can find a reason for it. people tend to [...]
Winter 2009. A big envelope in my mail from the AMC Amsterdam (academic hospital). If I would like to join a group of people, which all have unexplained myoclonic spasms, for a special scientific trial? Goal; to see what we have in common. There would be lot’s of questions and tests taken like; blood tests, [...]
Winter 2008. I went to doctor K for more details about a Conversion Disorder. It would take him a couple of times untill I got the message. I couldn’t find good websites, so depended on my neurologist. It was all very confusing. As you can read in my post about a Conversion Disorder, it’s a weird [...]
What is a Conversion Disorder: Conversion disorder is a condition in which patients present with neurological symptoms such as numbness, blindness, paralysis, or fits without a neurological cause. It is thought that these problems arise in response to difficulties in the patient’s life, and conversion is considered a psychiatric disorder. Formerly known as “hysteria”, the [...]
After I made the decision to go to het Roessingh, the rehabilitation centre, I also decided to go to get a second opinion in het AMC Amsterdam. In February of 2007 I got a phone call from the hospital, they asked; when I was planning to be in Amsterdam. Apparently something went wrong in the mail, because I didn’t [...]
2007, a new year with new plans. I was put on the waiting list for rehabilitation at the hospital. In the meanwhile I finally got physiotherapy 2 times a week. It wasn’t really working, I was already tired before I got there. And they didn’t know what to do with my kind of symptoms. In the beginning of [...]
In the Summer of 2006 I went to the UMC in Utrecht for further examinations. It’s a University Hospital, a lot bigger than the hospital nearby. Doctor K. hoped that they could tell what was wrong with me. Because I was on various antidepressants I can’t remember a lot of that period. I can recall first seeing [...]
In the Summer of 2006 I could start to go see a psychiatrist in the hospital. First I had tot take an interview with a resident. I had seen him already with my spinal tap, but it seem he got ‘promoted’ to another specialist field to try. He was nice but it was not easy to [...]
In the Summer of 2005 I was getting a bit too busy for my liking. I had to finish the last half-year of courses for my bachelor degree. After some discussion with my teachers I could keep working 4 days a week and do some school projects at work. Usually I went to school a day [...]
