It feels like I’m learning to be a zombie again. Last winter it was my favorite nickname. I was so drugged that I walked around without a goal or a lot of emotion. The weird thing how quick you forget that feeling if it goes better. My medication helped me so much. I got a new [...]
Some days you got news which makes you happy and sad at the same time. Today I got an email from my neurologist with the results of my DaT-scan. He never sends results by email, so it was a bit unexpected. He told me 3 things: 1. The scan looks completely normal. So I don’t [...]
On Tuesday 6 december I didn’t took my pramipex anymore. I wasn’t suppose to use it again before te scan. Within hours I could slowly feel the effect. That afternoon I went to my book club. At the end of the session someone asked me if something was wrong. I had suddenly more spasms than usual. Busted. So I [...]
29 November 2011 Today I got a letter from my hospital. My DaT-scan is arranged for 9 december. Well the paper said only brain investigation, but when I called the hospital to confirm the appointment they told me it was indeed a DaT-scan. http://en.wikipedia.org/wiki/Ioflupane_(123I) This is how a scan looks when everything is normal. It [...]
22 November 2011 After loads of stress and waiting, was today the day to go back to my neurologist doctor K. The last time was in the beginning of May. It was only a 20 minute consult, so I made a document for the doctor (and to prepare myself) with everything we needed to discuss. I [...]
This is a letter or a speech to a pharmaceutical company. With the purpose of getting better medications and information about medications for people who don’t fit a profile of a normal diagnosis. I’m Sophie, 28 years old and have a chronic illness. I have with 10% of all patients a conversion disorder. If you [...]
There are some days when I’m wondering where all the time went. Just doing things I MUST do, takes so much time. Also everything about being ill takes too much time for my liking. Everything you do takes longer and more planning. To go to bed 2 or 3 times a day feel like a [...]
To feel more at ease with all my strange symptoms, I tried to picture what is happening in my head. I have the feeling there are tiny monsters living in my brain. Johan, my therapist tried with me to get all kinds of metaphors and images of those monsters. So I felt less scared of my symptoms. It [...]
It’s now or never, I ain’t gonna live forever I just want to live while I’m alive It’s my life! While I was finding a song about changing the way I look at life. I stumbled at this song. The words went directly through my heart. It was always one of my favorites, but I never felt [...]
